Tuesday, July 22, 2014

Gastroenterology Visit and Summer fun!

Hello Ava friends and followers. It’s been awhile since I last posted. And you know I always say no news is good news! Ava’s been having a great Summer.

We went to visit family in St. Louis a few weeks ago to celebrate the 4th of July. We always have such a wonderful time. We are blessed to have such an amazing, supportive and loving family! As you can see Ava had the most fun of all!


We also went to the beautiful Botanical gardens. They had a Lego display that Ava was excited to see. I am always thrilled to be able to take a few pictures of the beautiful flowers and nature. The girls all had a great time here.


Ava's also been going to Summer school and she loves it. She is a little behind in her reading and Math skills so we jumped at the opportunity to give her a little extra help. She goes Monday through Friday... two hours a day. She will start school on August 18th. It's coming soon!

Yesterday I took her to her GI doctor. Ava still struggles with acid reflux as most congenital diaphragmatic hernia children do. Hers is mostly silent but flairs up and makes her nauseous occasionally. She's on 30 mgs of Prevacid two times a day. If she needs something more she takes liquid Zantac. Dr. Ebach was happy with how Ava has been doing. We sure love Dr. Ebach!

Ava weighs 50 pounds exactly. Her height is 4' 5.1 inches. Let me tell you this little girl has been shooting up. Another 6 or so inches and she will be as tall as me! That's just craziness!


We couldn't be happier with how well Ava is doing. She has such a huge JOY for life. We thank God all the time for her health. Her scars are starting to bother her as we suspected one day they would. Some of them can be "fixed" to look a little better and we may look into it further if she chooses to be sad about them. I look at them as VICTORY marks. She's overcome so much. When I think back through the years and the many "tests" she's had to endure I can't help but ponder the Goodness of our Lord and Savior. He along with us needs Ava here. I can't wait to see how He uses her life!

Well thanks for all your prayers, love and support. We appreciate them all!

~Terri

Tuesday, February 11, 2014

"Living with Scars" Project

Hello Ava friends! Many of you know I started a face book page for parents with congenital diaphragmatic hernia survivors. Well today marks our 3rd Birthday! I am so excited as the page has over 1500 followers. I decided to start the “Living with Scars” project to educate people of congenital diaphragmatic hernias. I asked parents to take a picture of their child’s cdh scar and post it on face book. I also asked them to tell us what they thought about when they see their child’s scar. CDH is such a battle and still to this day the success rate is only 50/50. Not good odds. I’m thrilled though the page is doing so well. I attribute it to so many wonderful moms and dad that give what works for them to help others!

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Here is Ava’s. I’m so proud of her!

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What do I think about when I see my daughter's CDH scars?


I have a feeling of complete gratefulness that she is here with us today. I feel very BLESSED! It shows how hard she fought to survive this birth defect time and time again. I think of her courage and strength and how hard it must have been for her. It reminds me never to take life for granted, that we are never assured tomorrow. I know that her scars are just part of who she... a fighter in all sense of the word. I am SO proud to be her Mom!


A Diaphragmatic hernia is a birth defect in which there is an abnormal opening in the diaphragm allowing part or sometimes all of the organs from the belly (stomach, spleen, liver and intestines) to go up into the chest cavity, compromising the heart and lungs.

If you have a CDHer and want to get involved in this project please visit our page today!

https://www.facebook.com/raisingcdhkids

Ava’s been doing much better after her bout with the stomach flu. She did end up losing 3 pounds which is pretty drastic for her but we will gain it back slowly but surely.

Schools been going great and yesterday she came home with an AWARD. I was so happy for her. It is a gift certificate to Wendy’s signed by her principle and her teacher.

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I also happen to grab the other two girls and get their picture taken as well. We’ve been so busy these days I don’t take near the amount of pictures we did before. We are still helping out with my sister’s twins so life has been a little nuts lately!

We are so proud of our girls!

Girls February 2014

Thanks again for dropping by… we appreciate all the support and prayers!

~Terri

Wednesday, January 29, 2014

Where does time go?

Hello Ava friends and followers! Ava’s been trucking along… we had a great Christmas and a great new year. She’s been healthy for over 6 weeks. We’ve been so lucky as this Winter has been challengingly cold here in Iowa. However with low temperatures means that bacteria can be killed off… so that’s always a good thing!

Monday after school Ava just didn’t look right. I can always tell by her eyes. Her complains were a tummy ache, runny nose and coughing. Now we all know we didn’t need this. Last night the stomach flu hit her with a vengeance. Ava’s never had the stomach flu before. Whenever she’s thrown up it was due to bowel obstructions and her reflux. It always makes me terribly nervous and I immediately pray for the best. I called her school and the flu is really going around so that helps my anxiousness a little bit. She woke up still feeling icky but as the day wore on she pepped up a bit. She has been drinking Gatorade and had a small bowl of noodles for lunch.

I asked if I could take a few pictures of her tonight. She smiled! She’s such a trouper!

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A little update on me. I had my yearly colonoscopy and all looks well. I still find it hard to believe I had colon cancer. I’ve been blessed with great doctors that listen and care deeply about me. God is always in control through the good and the bad.

Our family went through a bad event in November. Our middle daughter Emeline got physically assaulted at one of our local parks. It was a nightmare. Many things went wrong that day. Again God was guiding her and she did all the right things to prevent her from getting hurt worse. We took her to the ER. She ended up very sore but nothing broken. We have dealt with the after effects of all of this and it’s been extremely hard on Emme and myself. She had never in her life been hit so it came as a huge shock that anyone could do this. (The girl that assaulted her was 12 years old.) Sadly there was a video taken of the incident that I had to watch and it left me horrified and with fear and nightmares. Emme didn’t feel safe at school so we pulled her out to do her schooling at home for over two months. The school helped in everyway they could. Yesterday was the hearing. Emeline was so courageous… she read her victims impact statement. She said that she wanted her assailant to be thoroughly watched so she couldn't hurt anyone else. She also said that this is one of the hardest things she's ever had to go through in her life but that it has made her a stronger person. I was so proud of her. It took such courage to get up in front of a room full of people, a judge, lawyers and not to mention the girl that assaulted her. What a strong young lady she has become. Pray for her as she still struggles with trust issues among kids her own age. She is back in school and has gotten a ton of support from her friends.

I often wonder why bad things happen… is it to make us stronger? Is it to learn more about life? Is it to help us in another situation to come in life? Is it to place our full trust in God? All of these and more. I stopped asking God why a long time ago… I just know it is part of the plan for my life. As a Mother it’s hard to watch your children struggle. We can only be there to support them and remind them that we will always be there for them. We can also ask God to heal them and us.

For those of you that used to be friends with me on facebook I have since left. (I did have to open another account to be able to continue my work with my cdh page ~Raising Healthy Congenital Diaphragmatic Hernia Children~ as this will always be my calling and my passion.) This incident with Emeline opened my eyes and I found myself always trying to “help” people. I need to help myself and my family right now. I feel like I had nothing left to give and it upset me to see so much complaining on facebook. I’m not sure I will ever return. If you ever want to send me a message my email address is still the same. mycdhlife@gmail.com

Thanks for dropping by! Prayers for Ava and Emeline would be much appreciated! God Bless.

~Terri Helmick

Sunday, November 10, 2013

Late but here’s Halloween

Hello friends and followers. It’s been super busy here at our house. I’m sorry for not updating sooner. Ava was sick with a cold around Halloween time so she missed school and her party which was sad for her but we still dressed up and had a fun time on our own. Here she is with her Dad.

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She loves Minions so naturally she had to become one!

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If you’ve been following us for awhile you would know I love dressing up for Halloween! I’m not sure what it is but I love being some one else for just a short time! Brian and I were chaperones at Emeline’s school dance. I dressed but Brian didn’t. The kids were angels around me… can you tell why? And you ask… who did my make-up? Sweet little me!

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I also do Ava’s school yearbook so you KNOW I had to dress up there as well even though my Aya baya was at home resting with her Dad.

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Ava went back to school this last week. It’s always hard on her when she’s been out a few days and this time it was an entire week. She’s such a trouper though.

Our family could use some prayers not only for Ava but for another daughter. I won’t go in details as I can’t right now but I do ask for prayers. Some times life can take some sharp turns. No matter what way you look you see discouragement from all different directions. I have such good girls and when one of them is hurt it cuts me deeply. This world has become evil and it breaks my heart. Please send some positive thoughts and many prayers our way. We love and thank you for it.

I’ll leave you with one last picture. The girls found these costumes and had to have them. I love the quote I added to the picture… I’m so proud of my girls for always showing “THEIR TRUE COLORS!” We’ve been seeing God’s love all around us! We are so happy he guides and protects our family.

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~The Helmick’s

Thursday, October 3, 2013

Peanuts anyone?

Hello Ava friends! So last week end we decided to take up an offer that “Give Kids the World” had given us when we left last November. (Free tickets!) We went to Worlds of Fun in Kansas City. We all had a great time. As always Ava gets my heart pumping. She had started coughing that Wednesday before and we started her regular “coughing regimen” and visited the doctor to see how her lungs sounded. She said they were clear. She wrote us a script for an antibiotic “just in case” which made me feel a LOT better. So Friday morning we packed our family and went! We also checked out Kaleidoscope on Saturday. What a great place for kids to explore and gain so much for their minds. Ava as well as her sisters were creating awesome works of art and loving it! If you have never been there and are around the area I highly recommend the Kaleidoscope!

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We loved this section as Ava’s school has “Book Nook”. A book nook is a book she brings home to read each day. It helps her read better!

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We loved this sink. It was just so neat!

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So since it rained on Saturday we decided to do the park on Sunday. What a great choice we made. It was a gorgeous day! And perfect for rides! Ava was over her cough by Sunday which helped me to enjoy it that much more! She is not afraid to ride almost everything! I on the other hand am afraid of everything! So photography fits me just fine on a trip like this!

Peanuts anyone?

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Ava 1

Ava 3

Ava 4

Ava 5

Ava 6

Ava 7

As you can see we had FUN! It was nice to get away. We had such a great family bonding time!

Now sad news is Ava woke last night with a very upset stomach. It didn’t take her long to get sick. I kept her home from school today and was glad I did as diarrhea was next. I called her teacher and she said it is “going around”. Not what I wanted to hear but we will do the best we can with what we are given. Please pray for little Ava. She’s a little trouper and rarely complains. She hates to miss school but knows she must when she isn’t well.

Thanks everyone for your love, support and many prayers! We are happy to share our good times and bad ones with you.

~Terri